Tuesday, February 23, 10:00 am - 12:00 pm
Ohio Rare Disease Day
In collaboration with NORD Ohio Rare Action Network
Ohio Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Ohio legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where Ohio is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to ensure that the Ohio RDAC is a success.
Thursday, March 11, 8:45 am - 12:00 pm
Cleveland Clinic Mellen Center NMOSD Patient Day
CBJF is proud to support:
Neuromyelitis Optica Spectrum Disorder (NMOSD): Educational Seminar for Patients, Family Members and Caregivers
Focus on Adult and Pediatric Patients
This half-day online event will include presentations by healthcare experts who will provide advances in diagnosis and care of the adult and pediatric patients living with Neuromyelitis Optica.
At the conclusion of the seminar, participants will be able to:
- Illustrate the recent updates in diagnosis and management of neuromyelitis optica disease.
- Understand available treatment options for neuromyelitis optica including management of acute relapses, disease modifying therapy, and symptomatic treatment options.
- Understand and learn strategies for the high prevalence of mental health symptoms and disorders in chronic disease.
- Describe the risk of COVID-19 in NMOSD patients and how the pandemic has affected NMOSD patient’s lives.
A podcast series, hosted by
In collaboration with
The first podcast of this series features Dr. Michael Levy who directs the NMO clinic and research laboratory at Massachusetts General Hospital in Boston. Dr. Levy will share the history of NMOSD, the various presentations, the diagnostic process, and an overview of treatments.